The Candlelighters Childhood Cancer Foundation
Offers support, advocacy and information to parents caring for children with cancer.
3910 Warner St.
Kensington, MD 20895
(800)366-2223
Children's Hospice International
Offers information on children's hospice care.
2202 Mt. Vernon Ave., Suite 3C
Alexandria, VA 22301
(800)24-CHILD or (703)684-0330
Children's International Project on Palliative/Hospice Services (ChIPPS)
National Hospice and Palliative Care Organization
Offers information on the program to enhance the science and practice of pediatric hospice and palliative care.
1700 Diagonal Rd., Suite 300
Alexandria, VA 22314
(703)837-1500
The Compassionate Friends
Provides grief support after the death of a child.
PO Box 3696
Oak Brook, IL 60522-3696
(877)969-0010
Department of Symptom Control and Palliative Care
M. D. Anderson Cancer Center
Provides information and resources about symptom control and palliative care.
1515 Holcombe, Box 08
Houston, TX 77030
(713)792-6085
End-of-Life Care for Children
Texas Childrenis Cancer Center
Texas Childrenis Hospital
Offers information and resources for families and professionals on end-of-life care for children. Also, offers "The End-of-Life Care for Children" handbook, which encompasses most of the materials on the website.
Houston, TX
Growth House
Excellent source for books and other publications regarding end-of-life care.
(415)255-9045
The National Organization for Rare Disorders, Inc.
Provides information about rare pediatric illnesses.
PO Box 8923
New Fairfield, CT 06812-8923
(203)746-6518
Pediatric Pain-Science Helping Children
IWK Grace Health Center, Dalhousie University
Offers resources, information and self-help for parents.
Halifax, Nova Scotia
Canada
Project Joy and Hope for Texas
Offers news and resource information about end-of-life care and bereavement services for families with children with life limiting illness.
PO Box 5111
Pasadena, TX 77508
(713)944-6JOY or toll free at (866)JOYHOPE
RELATED BOOKS
All Kinds of Love: Experiencing Hospice, by Carolyn Jaffe and Carol Ehrlich. Baywood, 1997.
The Hospice Choice: In Pursuit of a Peaceful Death, by Marcia Lattanzi-Licht, John J. Mahoney and Galen Miller. Simon and Schuster, 1998.
The Hospice Handbook: A Complete Guide, by Larry Beresford. Little and Brown, 1993.
Hospice: Practice, Pitfalls, and Promise, by Stephen Connor. Taylor and Francis, 1998.
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