(See resource index for related topics.)
Download Caregiver Resource Guide (Adobe Acrobat Reader required). A printed list may also be requested by calling 215-351-2095 or by mailing widerhorizons@whyy.org
And Thou Shalt Honor
PBS documentary and community outreach dedicated to increasing awareness in our communities about family caregiving. A web based database which is searchable is also available at www.caregiver-usa.org.
AARP
Offers extensive information on and support for caregiving, illness, grief, widowhood, funerals, wills and estate planning and advance directives.
601 E Street, NW
Washington, DC 20049
(202)434-2260
Information can be found on:
Abington Memorial Hospital Home Care Program
Abington Memorial Health Center
Schilling Campus, Suite 250
2510 Maryland Road
Willow Grove, PA 19090-0520
(215) 481-5800
(215) 481-5850 (FAX)
TTY (for hearing impaired) :(215) 481-5755
Offers a full range of multi-disciplinary services for care of patients in their own home; including comprehensive physical assessments, patient and caregiver education, wound care, therapeutic treatments, nutrition assessment and diet counseling, medication administration and supervision, intravenous medication therapy, crisis intervention, counseling and referral to other community resources.
Abington Memorial Hospital
Muller Center for Senior Health
Caregiver's Support Group
Telephone (215) 481-3160
Provides education and support for those providing care to a loved one, friend or neighbor. This support group meets the last Monday of each month.
ALS Association - Greater Philadelphia Chapter
Persons with ALS or their family members and caregivers register to participate in services which includes local resource groups, education, respite and referrals.
(215)643-5434
Alzheimer's Association of the Delaware Valley
Provides information and services through its Helpline. Support group, family caregiver education seminars, safe return programs for wanderers, newsletters and speaker's bureau to person's with Alzheimer's disease or related disorder and their caregivers.
800-272-3900
ALZwell Caregiver Support
ALZwell is dedicated to helping dementia caregivers to find understanding, wisdom, and support offering information on dementia care and other aspects of eldercare, a network of support groups and links to other resources.
Association for Frontotemporal Dementias (AFTD)
The AFTD is a nationwide non-profit organization whose mission is to promote and fund research into finding the cause and cure for the frontotemporal dementias; to provide information, education, and support to persons diagnosed with FTD and their families and caregivers; to educate physicians and allied health professionals about FTD.
Address: P.O. Box 7191
St. David's, PA 19087-7191
Caregiver Survival Resources
Provides help in coping with the demands of caregiving.
The Caregivers Marketplace
An online service providing rebates and discounts on the purchase of caregiving supplies and equipment. (866)-327-8340 or
Caregiving.com
A national online support haven since 1996, helps persons caring for aging relatives. The site features the faces of caregiving, sharing stories from the caregiving trenches, and focuses on practical solutions for caregiving conundrums. Web site visitors can enjoy weekly tips, an advice column and ten online support groups.
CARIE (Center for Advocacy, Rights and Interests of the Elderly)
Provides free telephone consultation, which provides options counseling and problem resolution services to the older person, their caregivers and professionals. (215)545-5728
Children of Aging Parents (CAPS)
A non-profit organization which establishes and facilitates caregiver support groups, provides educational outreach and information on available services to assist caregivers. (800)227-7294 or
Counseling
for Caregivers, Madlyn and Leonard Abramson Center for Jewish Life (formerly Philadelphia Geriatric Center)
Helps caregivers through information, referral, education and counseling find the skills and services they need to balance caring for their older relative with taking care of themselves. (215)371-1350
Eldercare OnLine: The Internet Community of Elder Caregivers
Eldercare Online provides comprehensive information, education and support for people caring for aging loved ones. It has a comprehensive library of articles, educational materials and on-line support groups.
Episcopal Community Services
225 South 3 rd Street
Philadelphia, PA 19106
215-351-1400
Episcopal Community Services, ECS offers home health care as well as pastoral care training and support. ECS Home Care provides certified home health aides for low-income homebound elderly. ECS home health aides provide personal care, and caregiver respite support. ECS also offers pastoral training and support in hospitals, nursing homes and churches in Bucks, Chester, Delaware, Montgomery, and Philadelphia Counties. ECS also publishes a Prayer flyer for those who are sick. http://www.ecs1870.org
The Family & Workplace Connection
The Family & Workplace Connection's free AccessCare service provides
information and referrals for a variety of elder care services throughout
Delaware. These services include housing options, adult day care,
home health agencies, food programs, legal services, and much more. Access the information by calling 302.479.1679 (1.800.660.6602) for those outside New Castle County, Delaware) or go online to complete an intake form .The Family & Workplace Connection is a Delaware-based nonprofit organization.
Family
Caregiver Alliance, National Center on Caregiving
(800)445-8106
Works to advance the development of high quality cost effective policies and programs for caregivers in every state of the country.
The Family Caregiver Alliance site has specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS and other disorders. Fact sheets regarding various diseases and caregiving information can be found at: http://www.caregiver.org/caregiver/jsp/publications.jsp?nodeid=345 Some materials are available in Spanish and Chinese.
The Home Care Network
The website for The Home Care Network includes an audio and animated section on skills for home caregiving.
The direct link to tips for caregivers can be found at: http://www.mainlinehealth.org/mlh/clinspec/senior/article_2751.asp
Holy Redeemer Health System Coping with Caring
Program offers educational resources and ongoing support to caregivers through special seminars (spring and fall), and support groups designed to address the needs of caregivers and their families. For more information on Holy Redeemer's Coping with Caring program, please call 1-800-818-4747.
Life Assess Program
Holy Redeemer LifeAssess is the first program of its kind in the nation to be certified by the Joint Commission on the Accreditation of Healthcare Organizations (JCAHO). The LifeAssess program -- a collaborative effort of Holy Redeemer's two home health agencies is a comprehensive assessment and rehabilitation program for people age 85 that seeks to identify and offer intervention for the four most common geriatric syndromes (falls risk, incontinence, depression and dementia). For more information on the Holy Redeemer LifeAssess program, please call 1-800-818-4747.
National
Alliance for Caregiving
Supports family caregivers through resource guides and information available online or in print. Website is home of the AXA Foundation Family Resource Connection, a searchable database of books, videos, websites, etc. for caregivers.
write:
4720 Montgomery Lane, Suite 642, Bethesda, MD 20814
National Association of Geriatric Care Managers
Provides a searchable database of geriatric care managers who are committed to maximizing the independence and autonomy of elders while striving to ensure that the highest quality and most cost effective health and human services are used when and where appropriate. A comprehensive list of organizations serving the needs of elderly and their caregivers can be found via the home page by clicking
on "Care Management Resources."
National
Family Caregivers Association
A grass roots organization created to educate, support, empower and speak up for the common needs and concerns of all family caregivers.
(800)896-3650 or
Time
Out Respite Program: Temple University Center for Intergenerational Learning
College students are trained to assist caregivers with elderly relatives living in Philadelphia. Bilingual students are available for Latino families. Services include: caring companionship, meal preparation, providing a safe environment, assistance into the bathroom, lending support to caregivers, recreational and social activities, light grocery shopping and escort to medical services. The cost is $7.00 per hour and there is a $25.00 annual registration fee. Services
are scheduled at least 8 hours per month and the same student is assigned for 14 weeks.
For more information please contact Susan G. Smith at 215-204-6540.
Today's Caregiver Magazine
Published on a monthly basis this magazine and companion website provides helpful information and resources for caregivers.
Well
Spouse Foundation
An association of spousal caregivers which provides peer support groups for long term caregivers. Participants from friendships with other caregivers in similar situations. (800)838-0879 or
U.S. GOVERNMENT RESOURCES
Administration on Aging Elderpage: Information for Older Persons and Families
This site provides information and a range of suggestions to make caregiving
easier and more successful-whether you are a caregiver or the person who ensures that your family member or forend received the best possible care from others.
Eldercare Locator
A nationwide service available toll free or on the web which helps older adults and their caregivers find local services for seniors. The toll free Eldercare Locator service operates Monday through Friday, 9:00AM to 8:00PM, Eastern Time and can be reached at 800-677-1116 or the Eldercare Locator can be accessed via the internet at.
Aging Parents and Adult Children Together (A/PACT)
A series of ten articles produced by the Federal Trade Commission in partnership with AARP. The series will introduce you to eldercare issues you may confront and help investigate options and make decisions.
REGIONAL RESOURCES - PENNSYLVANIA
Area Agencies on Aging
County programs are designed to support the caregiver so they can
continue to provide care to an older loved one in the care recipient's
home.
National PACE (Programs for All-inclusive Care for the Elderly) Association
Programs for All-inclusive Care for the Elderly provide and coordinate
all needed preventive, primary, acute and long term care services so that an older individuals can continue living in the community. To be eligible for PACE a person must be 55 or older, be certified by the state to need nursing home care and live in an area served by a PACE program. In Pennsylvania, this program is called LIFE (Living Independently for Elders), due to the prexisitng pharmacy
benefit program administered by the state also called PACE. Further information on PACE and LIFE programs can be found at the national web site.
Local sites are:
LIFE University of Pennsylvania School of Nursing
4101 Woodland Avenue
Philadelphia, PA 19104
215-573-7200
LIFE Saint Agnes
1500 S. Columbus Boulevard
Philadelphia, PA 19147
215-339-4447
The Telesupport Project
Telephone-based support for women aged 55 years of age and older caring for a relative with Alzheimer's Disease or other dementia. Research project conducted by em>Thomas Jefferson University and the Supportive Older Women's Network (SOWN), funded by the Alzheimer's Association. Purpose is to find the best ways to provide support to women caregiving for a relative for Alzheimer's Disease or other dementia. Participants are paid $30.00.
(215)503-2897
Visiting Nurse Association of Greater Philadelphia
Monroe Office Center
One Winding Drive
Philadelphia, PA 19131
(215) 473-0772
The Visiting Nurse Association of Greater Philadelphia is a not-for-profit provider of home health care throughout southeastern Pennsylvania. VNA services include skilled nursing, therapies, social work and home health aide care as well as home hospice care and specialty care services. VNA HouseCall, a team of visiting doctors and nurse practitioners, provides diagnostic, prescriptive and primary care medical services in patients' homes.
REGIONAL RESOURCES - DELAWARE
CARE Delaware
Assistance for caregivers includes needs assessment And care planning by experienced Delaware Division Of Services for Aging and Adults with Physical Disabilities ( DSAAPD), organization of support groups and caregiver training, respite care, statewide caregiver Resource centers and community based services.
(800) 223-9074
New Castle County: (302) 453-3820
Kent/Sussex Counties: (302) 422-1386
Contact Delaware
24-hour, 7 day/week crisis helpline for all problems, staffed by trained volunteers who provide telephone support and referrals, including bereavement support groups and grief counseling throughout the state.
(800)262-9800
REGIONAL RESOURCES - NEW JERSEY
Caregiver NJ
A newly launched website designed for caregivers provides basic information regarding a variety of caregiving situations, resources and services available in New Jersey to assist caregivers and helps with searches for services and resources by county.
Community Choice Promoting Dignity, Independence and Choice
Community Choice is a statewide program of the New Jersey Department of Health and Senior Services created to assure that senior citizens, persons with disabilities and their families are aware of choices they have when it comes to long term care. The 'Uselful Links' section of the website contains a comprehensive list of national and state organizations, orgainzations related to specific diseases, advocacy groups, and associations for those in different cultures. The information can be accessed at:
Healthy NJ
Lists and links to resources for caregivers in New Jersey can be found at the following links:
http://www.healthynj.org/health-wellness/caregive/main.htm
http://www.healthynj.org/health-wellness/caregive/links.htm
NJ EASE (New Jersey Easy Access, Single Entry)
Department of Health and Senior Services initiative in partnership
with county governments to provide a new and easy way for senior
citizens and their families to learn about and obtain needed services.
Toll free (877)222-3737
RELATED BOOKS
Always On Call Carol Levine, (United Hospital Fund; $20.00)
And Thou Shalt Honor: The Caregiver's Companion, Beth Witrogen McLeod, (Rodale Press, 2002) $24.95
This companion book contains information and strategies helpful to the caregiver and a resource section listing books, web sites and contact information for national organizations. Available in bookstores or by calling 800-527-8200.
Caregiving and Loss, edited by Kenneth J. Doka and Joyce Davidson, (Hospice Foundation of America, 2001) $24.95
Caring for Aging Parents, Linda Colvin Rhodes, EdD, (Alpha Books, 2001) $16.95
Counting on Kindness, Wendy Lustbader, (Free Press, 1991) $14.00 available at www.lustbader.com
Dutiful Daughters, edited by Jean Gould, (Seal Press, 1998) $16.95
Elder Rage or Take My Father...Please, Jacqueline Marcel, (Impressive Press, 2001) $19.95
Handbook For Mortals: Guidance For People Facing Serious Illness, Joanne Lynn, M.D. and Joan Harrold, M.D. (Oxford University Press, 1999) $34.00
A comprehensive and authoritative guide to end of life care, written for a general audience by a team of specialists that includes some of the world's leading authorities in the field. This readable and sensible book should be read by every family caring for a loved one who is seriously ill, and by every medical professional working in a palliative care setting.
Love, Honor and Value: A Family Caregiver Speaks Out About the Choices and Challenges of Caregiving, Suzanne Geffen Mintz, (Capital Books, 2002) $14.95
Respecting Your Limits When Caring For Aging Parents, Vivian Greenberg, (Jossey-Bass,1989) $20.00
The 36 Hour Day: A Family Guide to Caring for Persons With Alzheimer Disease, Related Dementing Illness, and Memory Loss in Later Life, Nancy L. Mace, Peter V. Rabins, MD, (John Hopkins University Press, 1999) $7.95
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